Ranking results:

Past rankings:

2019
Criterium:	Position:
Overall Score:	> 1000
Total Project Funding per Partner:	> 1000
Total Number of Projects:	> 1000
2012
Criterium:	Position:
Overall Score:	900-1000
Networking Rank (Reputation):	> 1000
Networking Rank (Reputation):	> 1000

Ranking timeline:

Project Participation Performance(2012-01-01 - 2025-12-31 ):

Total Project Funding:

Total funding allocated to projects this organisation participated or coordinated

Funding per Partner:

Since 2014 individual funding per partner. If data is not available at CORDIS: total funding / No of participants.

Projects:

Leadership:

Total number of projects: 3
As coordinator: 0
As participant: 3
Sole participant: 0
Coordinator / Participant Ratio: 0^*

^*Ratio includes only projects with > 2 partners

Summary:

	Total project funding [€]:			Projects [No]:
Year:	coordinator^*	participant^*	per partner	as coordinator	as participant
2019	0	55.073.831	908.920		1
2012	0	13.997.111	1.444.337		2

^*n.b.: These numbers represent the total amount of funds allocated to projects this institution has participated in, not the funding allocated to this institution

Networking:

Partners:

Institution:	Projects [No]:
EUROPEAN MOLECULAR BIOLOGY LABORATORY	2
FONDAZIONE TELETHON	2
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE	2
INSTITUTO DE SALUD CARLOS III	2
ISTITUTO SUPERIORE DI SANITA	2
UNIVERSITY OF NEWCASTLE UPON TYNE	2
ACADEMIC MEDICAL CENTRE AMSTERDAM	1
ACADEMISCH ZIEKENHUIS GRONINGEN	1
ACIBADEM MEHMET ALI AYDINLAR UNIVERSITY	1
AGENCE NATIONALE DE LA RECHERCHE	1
ASS FRANCAISE CONTRE LES MYOPATHIES	1
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS	1
AUSTRIAN RESEARCH CENTERS SIEBERDORF	1
AZIENDA OSPEDALIERA UNIVERSITARIA SENESE	1
AZIENDA OSPEDALIERO UNIVERSITARIA PISANA	1
AZIENDA SANITARIA UNIVERSITARIA FRIULI CENTRALE	1
BIOBANKS AND BIOMOLECULAR RESOURCES RESEARCH INFRASTRUCTURE CONSORTIUM	1
BLACKSWAN FOUNDATION	1
CANADIAN INSTITUTES OF HEALTH RESEARCH	1
CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD	1
CENTRE DE REGULACIO GENOMICA	1
CENTRO DE INVESTIGACION BIOMEDICA EN RED	1
CHARITE UNIVERSITAETSMEDIZIN BERLIN	1
CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE	1
DEPARTMENT OF HEALTH GOVERNMENT OF WESTERN AUSTRALIA	1
DEUTSCHE FORSCHUNGSGEMEINSCHAFT	1
DEUTSCHES ZENTRUM FUR LUFT UND RAUMFAHRT EV	1
EATRIS ERIC	1
ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK	1
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM	1
EUROPEAN ORGANISATION FOR RARE DISEASES	1
EUROPEAN ORGANISATION FOR RESEARCH AND TREATMENT OF CANCER AISBL	1
EURORDIS EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION	1
FINOVATIS	1
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS	1
FONDAZIONE REGIONALE PER LA RICERCA BIOMEDICA	1
FONDS DE LA RECHERCHE SCIENTIFIQUE FNRS	1
FONDS DE RECHERCHE DU QUEBEC SANTE	1
FONDS NATIONAL DE LA RECHERCHE	1
FONDS VOOR WETENSCHAPPELIJK ONDERZOEKVLAANDEREN	1
FONDS ZUR FOERDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG	1
FUNDACAO PARA A CIENCIA E A TECNOLOGIA	1
FUNDACIO PRIVADA PARC CIENTIFIC DE BARCELONA	1
FUNDACION CENTRO NACIONAL DE INVESTIGACIONES ONCOLOGICAS CARLOS III	1
GDANSKI UNIWERSYTET MEDYCZNY	1
GENIKI GRAMMATIA EREVNAS KAI KAINOTOMIAS	1
HACETTEPE UNIVERSITESI	1
HELIOS DR HORST SCHMIDT KLINIKEN WIESBADEN	1
HOPITAUX UNIVERSITAIRES DE STRASBOURG	1
IMAGINE INSTITUT DES MALADIES GENETIQUES NECKER ENFANTS MALADES FONDATION	1
INFRAFRONTIER	1
INNOLYST INC CORPORATION PATIENTCROSSROADS	1
INSERM TRANSFERT	1
INSTITUTO NACIONAL DE SAUDE DR RICARDO JORGE	1
INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA	1
INTERACTIVE BIOSOFTWARE SARL	1
ISTITUTO ORTOPEDICO RIZZOLI	1
JOHANN WOLFGANG GOETHE UNIVERSITAET FRANKFURT	1
KAROLINSKA INSTITUTE	1
KATHOLIEKE UNIVERSITEIT LEUVEN	1
LEIDEN UNIVERSITY MEDICAL CENTER	1
LEIDS UNIVERSITAIR MEDISCH CENTRUM	1
LIETUVOS MOKSLO TARYBA	1
LUDWIG BOLTZMANN GESELLSCHAFT	1
MEDIZINISCHE UNIVERSITAT GRAZ MEDUNI GRAZ	1
MINISTERO DEL LAVORO DELLA SALUTE E DELLE POLITICHE SOCIALI	1
MINISTERO DELL'ISTRUZIONE DELL'UNIVERSITA' E DELLA RICERCA	1
MINISTRY OF EDUCATION YOUTH AND SPORTS	1
MINISTRY OF HEALTH	1
MURDOCH UNIVERSITY	1
NARODOWE CENTRUM BADAN I ROZWOJU	1
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL	1
REGIONE TOSCANA	1
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG	1
SERVICIO MADRILENO DE SALUD	1
SLOVENSKA AKADEMIA VIED	1
SOTSIAALMINISTEERIUM	1
ST ANNA KINDERKREBSFORSCHUNG VEREIN	1
STICHTING KATHOLIEKE UNIVERSITEIT	1
SUOMEN AKATEMIA	1
TEDDY EUROPEAN NETWORK OF EXCELLENCE FOR PAEDIATRIC CLINICAL RESEARCH	1
THE HEALTH RESEARCH BOARD	1
THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST	1
THE UNIVERSITY OF LIVERPOOL	1
THE UNIVERSITY OF TUEBINGEN	1
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU	1
UNITED STATES DEPARTMENT OF HEALTH AND HUMAN SERVICES	1
UNIVERSIDAD POLITECNICA DE MADRID	1
UNIVERSIDADE DE AVEIRO	1
UNIVERSITAET ULM	1
UNIVERSITAET ZUERICH	1
UNIVERSITAETSKLINIKUM AACHEN	1
UNIVERSITAETSKLINIKUM FREIBURG	1
UNIVERSITAETSKLINIKUM HEIDELBERG	1
UNIVERSITE D'AIX MARSEILLE	1
UNIVERSITE DE PARIS VII DENIS DIDEROT	1
UNIVERSITEIT MAASTRICHT	1
UNIVERSITY OF LEICESTER	1
UNIVERSITY OF MALTA	1
UNIVERSITY OF PATRAS	1

Constancy:

Total number of partners: 114
Partner loyalty:
Frequent Partner: (> 2 projects): 0
Rare Partner: 114
Frequent / Rare Partner Ratio: 0

Project overview:

Start date	Project	acronym	role	funding	partners
2019-01-01	European Joint Programme on Rare Diseases	EJP RD	participant	55.073.831	88
2012-11-01	"RD-CONNECT: An integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research"	RD-CONNECT	participant	11.997.111	27
2012-10-01	Support for international rare disease research to serve the IRDiRC objectives	SUPPORT-IRDIRC	participant	2.000.000	2

FONDATION MALADIES RARES - France